Monday, April 15, 2013

"eb"ing a voice.

While I was pregnant with Cayn a friend of mine shared a link on facebook and it immediately caught my attention. It was a link to a blog written by a mommy, and this particular mommy's little angel had a very rare disease known as Epidermolysis Bullosa (EB). Once I read her most recent post I couldn't stop. With tears pouring down my face I continued to go back to older posts until I reached the very beginning. Nothing prepared me for the emotions I would feel reading that blog (it didn't help that I was pregnant) but once I read it there was an uneasiness I just couldn't shake. I kept up with her blog for months, everytime she would post it would put me at ease a little bit. Until one day when she posted this.

Now, I know this is hard for some to read  and although totally heart shattering, I encourage you to read her blog. I felt for this woman, I hurt for this woman and I grieved just like I knew these people. Baby Tripp made an impact on me and I never ever knew him.

I still think of him and his mommy. I still pray for her and wish I could wrap my arms around her. And because of their story, I was led to another story about a beautiful little boy named Easton. He is battling the same disease as Tripp. Here is a link to his facebook support page. I don't know this family personally, but I do keep up with how things are going. I just want to ask anyone who reads this to please send up a prayer for this precious baby and his family. There is something about innocent babies battling awful diseases that I can never understand, but I know that God has a plan no matter what the circumstances.